Once completed and signed, the consent form must be sent by post to
Ms Emily Pintani
Centro Regionale Veneto SDS c/o Centro Fibrosi Cistica
Azienda Ospedaliera Universitaria Integrata di Verona
P.le Stefani 1, 37126 Verona
Choose how you want to submit the completed forms:
- post, to the address indicated above
- fax: (++39) 045 812 2042
- e-mail: info@registroitalianosds.org
What is Shwachman-Diamond Syndrome (SDS)?
SDS is a rare disease whose frequency is estimated at about 1 in 100,000-150,000 live births.
The basic clinical features are pancreatic insufficiency at birth, resulting in slow growth, with haematological and bone disorders.
For more detailed information, see the following illustrative booklet.
